ALAN's projects and initiatives
Projects and Initiatives
ALAN is an independent network of patient organisations dedicated to changing outcomes of patients with acute leukemias.
The steering committee of ALAN have identified some key projects which are designed to address specific unmet needs.
These projects are intended to be patient-led, collaborative and evidence-based.
ALAN's Projects and Initiatives
In the previous years, ALAN had completed number of projects including
- Global Quality of Life Survey (acute leukemia specific)
- Impact of patient involvement in HTA
- Patient preference studies
- Carer preference study
- Leukemia Patient and Carer Experience Survey
The full report of what ALAN achieved can be viewed here:
2021 –> ALAN Annual activity report_2021
2022 –> ALAN Annual activity report_2022
2023–> ALAN Annual activity report_2023
2024–> ALAN Annual activity report_2024
2025–> ALAN Annual activity report_2025
Collaboration and involvement in other projects
In the previous years, ALAN has been involved in a number of projects including
- HARMONY
- T2Evolve
- Meet-AML
- IMI-SISAQOL
- MRD Testing Collaborative
- Anti Cancer Fund
- Polaris
- Share4Rare