Patient Experience Survey

 

Objective

Multi-country survey to generate data, understand issues and gather information on the current and emerging treatment landscape, experiences and quality of life of patients.

Rationale

  • To identify priority topics, assess areas of change (since the ALAN 2019 survey) including (but not limited to) COVID.
  • Create further evidence about patient experience and quality of life at different points in the acute leukemia patient journey.
  • Include a carer cohort – to evidence the impact from their perspective
  • Aid patient advocates and advocacy groups to inform and influence stakeholder communities, industry, and policy makers – enabling evidence-based advocacy.
  • Help to identify and communicate the varying levels of information, care and support available for patients and caregivers.