Projects & Initiatives - ALAN

ALAN's projects and initiatives

Projects and Initiatives

ALAN is an independent network of patient organisations dedicated to changing outcomes of patients with acute leukemias.

The steering committee of ALAN have identified some key projects which are designed to address specific unmet needs.

These projects are intended to be patient-led, collaborative and evidence-based.

ALAN's Projects and Initiatives

#BeLeukemiaAware Awareness Campaign

Leukemia Patient and Carer Experience Survey

Online education

#BeLeukemiaAware Awareness Campaign

Leukemia Patient and Carer Experience Survey

Online education

Blood Cancer Patient Advocates Academy

Acting on patient evidence

Patient Preference Study – Understanding the preferences of people with acute leukemia for different health outcomes

Patient Preference Study – Patient preferences for treatment in relapsed/refractory acute leukemia

Carer preference study – Capturing the Lived Experiences of Informal Care in Acute Leukemia

Acute Leukemia Global Summit

Community Adboards

In the previous years, ALAN had completed number of projects including

Advocate Development Programme
Global Quality of Life Survey
Impact of patient involvement in HTA

The full report of what ALAN achieved can be viewed here:

2021 –> ALAN Annual activity report_2021

2022 –> ALAN Annual activity report_2022

2023–> ALAN Annual activity report_2023

2024–> ALAN Annual activity report_2024

2025–> ALAN Annual activity report_2025

Collaboration and involvement in other projects

EHA Patient Advocacy Committee

European Cancer Organisation

EHA Patient Advocacy Committee

European Cancer Organisation

Anti Cancer Fund

In the previous years, ALAN has been involved in a number of projects including

HARMONY
MRD Testing Collaborative
Meet-AML
IMI-SISAQOL
Polaris
Share4Rare