WHO Global Survey on Lived Experience of People Affected by Cancer
World Health Organization launched a study on the lived experience of people affected by cancer. The study invites all people aged 18+ who have been diagnosed with cancer and their family members, to participate in a survey to help us understand their lived experience. By lived experience, we mean how the experience of cancer can impact different areas of people’s lives, including their social, emotional, and financial health.
This study is conducted by researchers at the World Health Organization, in collaboration with a global advisory team of researchers and people with lived experience, and supported by a team at the University of New South Wales, Australia.
The study is inviting the following groups of people aged 18+ to complete a 30-minute online survey which is available in 10 languages:
- People diagnosed with cancer who:
- Are currently receiving cancer treatment, or
- Are not currently receiving cancer treatment, or
- Have completed cancer treatment (i.e. survivors)
- Family members of people affected by cancer (including those who are receiving cancer treatment, whose who are not receiving cancer treatment, and those who have completed cancer treatment)
- Family members of a person who has died from cancer
The links to the survey are:
English: https://extranet.who.int/dataformv3/index.php/663746?lang=en
Spanish: https://extranet.who.int/dataformv3/index.php/663746?lang=es
French: https://extranet.who.int/dataformv3/index.php/663746?lang=fr
Arabic: https://extranet.who.int/dataformv3/index.php/663746?lang=ar
Russian: https://extranet.who.int/dataformv3/index.php/663746?lang=ru
Mandarin: https://extranet.who.int/dataformv3/index.php/663746?lang=zh-Hans
Brazilian Portuguese: https://extranet.who.int/dataformv3/index.php/663746?lang=pt
Turkish: https://redcap.unsw.edu.au/surveys/?s=HAKKL9CXPTAKFFMK
Polish: https://redcap.unsw.edu.au/surveys/?s=WLJA77C3T9ED8DEW
Romanian: https://redcap.unsw.edu.au/surveys/?s=P4KXMR4CH883TMJF
Participation in this research is voluntary. If you have any questions about this research, please contact our team at whocancer@unsw.edu.au.
Thank you!
Dr Julie Cayrol and Dr Clarissa Schilstra
Study Coordinators, On behalf of the Lived Experience of People Affected by Cancer Team:
Prof Claire Wakefield
Dr Lori Wiener
Dr Jordana McLoone
Ms Ruth Hoffman
Mr Moses Echodu
Dr Roberta Ortiz
Dr Andre Ilbawi
This research is supported by the American Childhood Cancer Organization