Sophie Wintrich
Steering Committee Member

Sophie has been working with patients and patient support groups since 2001.

First through several years in medical market research, specializing in the recruitment and interviewing of patients, followed by 16 years in patient advocacy.

She developed the european office of the MDS Foundation, co-founded and ran the first UK support group solely dedicated to MDS Myelodysplastic Syndromes (MDS UK) and also co-founded the international umbrella group MDS Alliance.Sophie gained specific insight into the needs of MDS patients and carers by advising and counselling them for 16 years.

She took part in many of the major European research projects (including Harmony, EuroBloodNet), numerous clinical trials (advice, PPI, recruitment), and was a member of several patient advocacy groups (Blood Cancer Alliance, WECAN, Cancer52).

Sophie is very familiar with the licensing of drugs, HTA processes, PROs, and QoL tools. Using her experience to date, Sophie now works as a freelance patient advocate.