LAUNCH: Global Leukemia Patient Experience Survey Now Open !
The survey is being run by the Acute Leukemia Advocates Network (ALAN), in partnership with the CLL Advocates Network (CLLAN) and CML Advocates Network (CMLAN), and aims to collect key data on important areas such as diagnosis, treatment and quality of life.
About the survey
In 2018, ALAN successfully ran the Acute Leukemia Quality of Life Survey, collecting over 500 responses from around the world. The results have been presented at numerous conferences as abstracts and posters and it informed our policy work. (More here: https://acuteleuk.org/publications/)
This year, we have even greater aspirations, and have partnered with CLLAN and CMLAN to build a global picture of the experiences of people with ALL, AML CLL and CML and their carers, friends and family. Our aim is to understand the key issues, experiences and unmet needs for leukemia patients.
How you can help?
To achieve our ambition, we are asking for your help. Please can you share the survey link to your leukemia membership, through social media, newsletters and mailing lists?
The more people we can reach, the better the data will be. In order to make the survey as accessible as possible, we translated it in 10 languages: English, Brazilian Portuguese, French, German, Hebrew, Italian, Korean, Simplified Chinese, Spanish and Russian.
PATIENT SURVEY: How to access ?
Taking part in this survey is voluntary and should take around 20 min to complete.
The questions should be answered by the person who has been diagnosed with leukemia. If help is given to complete the questionnaire, the answers should be given from the point of view of the person diagnosed with leukemia – not the point of view of the person who is helping.
The survey can be accessed using the following link:
Help us to promote ! You can use materials posted here : https://drive.google.com/drive/folders/1loSahF7Rm0qAr1qZHp9LUmjgOUFL32jn
CARER SURVEY: How to access ?
More details soon.
If you have any questions please contact Samantha at firstname.lastname@example.org
Thank you for your support!