Global Leukemia Survey : what did we learn ?
In 2021 and 2022, we run a global leukemia survey asking patients and their carers a lot of questions around their diagnosis, treatments, experiences and quality of life (QoL). This survey has been the largest study ever done in leukemia.
Disease-specific factors associated with decreased QoL in patients with leukemia have not been studied in a large-scale, global, observational study. Patients reported the greatest concerns over their future treatment and future health, as well as concerns over dying and being a burden to others.
Patients need access to support services, such as the availability of a clinical psychologist as part of the hematology team, to provide support with the emotional aspects of a leukemia diagnosis, especially for patients with acute leukemia subtypes reporting the lowest mean QoL scores.
In addition, leukemia patients require comprehensive care, including treatment, hospital visits, and family support. An awareness of the impact of leukemia on family members is crucial.
Read more:
Disease and treatment burden in patients with leukaemia family members partner perspective