Global Acute Leukemia Patient and Carer Survey : NOW OPEN !

We’re excited to share that the Acute Leukemia Global Survey 2026 is now live.

The survey aims to build the most comprehensive picture yet of what it’s really like to live with — or care for someone with — acute leukemia.

As a valued member and supporter of the ALAN network, your reach into the patient and carer community is exactly what will make this survey a success, and we’d love your help spreading the word.

About the survey

The survey explores the experience of acute leukemia from diagnosis through treatment and beyond, covering topics like quality of life, treatment decision-making, fertility, financial impact, and emotional wellbeing. The insights gathered will directly inform advocacy, research priorities, and improvements to care and support worldwide.

Who can take part

Anyone aged 18 or older who has been diagnosed with acute leukemia, or who is or has been a carer for someone with the disease. There are two question sets — one for patients and one for carers — and respondents can complete either or both. Each takes about 20 to 30 minutes. All responses are confidential and participation is voluntary.

How you can help

Materials available  https://drive.google.com/drive/folders/11HNg1iG56imhy0F_TDU5Vd0_fyClUCo5?usp=sharing

– Share the survey link with your community via email, website, and social media

– Post the social media graphic to your channels 

– Display or distribute the at events, clinics, or support group meetings

– Mention the survey in your own newsletter 

Survey link: https://bit.ly/AcuteLeukemiaGlobalSurvey2026 

We’ve attached the official poster and social media graphic for your use. Please let us know if you’d like these in another language or format.

Thank you for helping us amplify the voices of the acute leukemia community.