Calling on ASH to include patient advocates !

March 16, 2021

On 15th March 2021, 13 networks of patient organisations wrote to ASH Executive Committee to highlight the current situation which is preventing patient advocates from attending the American Society of Hematology (ASH) Annual Meeting and Exposition.

Currently there is no category for patient advocates to register their attendance at the meeting, meaning those who wish to attend must register as a ‘Non-Member’ with fees of $750-950, as per the virtual attendance at the recent 2020 meeting. This creates an impossible barrier to accessing information on the latest research and development on which our patient communities desperately rely.

Letter: https://acuteleuk.org/wp-content/uploads/2021/03/ASH-Letter-International-Patient-Advocacy-Organisations.pdf

How can you support this initiative:

We are planning to send both letters to ASH Executive Committee by mid April 2021.

We count on your support !