A Global Mapping exercise will allow ALAN to understand the resources that are currently available to acute leukaemia patients and caregivers, in various languages and countries, as well as the usefulness and quality of these resources. We will then create a database, including their location, language, and format. Once the mapping has been completed, ALAN will be able to determine where the information gaps reside, and can work with patient groups, individual patients and other stakeholders, to fill those gaps with co-created content.
The overall goal of a global mapping project will be to understand where and what are the existing resources available to Acute Leukemia patients and caregivers (both physical and digital), and to create a database of the resources, including their location, language, and format. Finally, in order to make the database, and any future resource hub, easy to navigate, we will categorise and assess all materials through expert panels of patients, medical professionals, communications professionals, and psychologists.
Once the mapping has been completed, ALAN will be able to determine where the information gaps reside, and can work with patients, patient groups and acute leukemia stakeholders, to fill those gaps with high quality, validated, co-created content in multiple languages. This exercise would inform future development and maintenance of a validated and up-to-date resource and news hub which will be hosted and maintained on the ALAN website. Validated resources will be shared on the open access areas of the site with searchable categories and language sections. There will also be a log-in secure content asset area for members to share materials for adaptation and translation internationally.
If you would like to find out more about this project, please contact us